The Perception of Disability Among Mothers Living With a Child With Cerebral Palsy in Saudi Arabia

Sanaa Mohamed Madi, Anne Mandy, Kay Aranda

Research output: Contribution to journalArticle

Abstract

The purpose of this study was to explore the perceptions of disability among Saudi mothers and to understand the implication of the meaning for the mothers of children with disability. A critical ethnographic approach was employed using focus groups
and follow-up interviews with the mothers. Three primary themes were identified that specifically influenced and affected the mothers’ experiences: (a) culture and religion, (b) motherhood and disability, and (c) community stigma and discrimination.
The study reveals much-needed knowledge and sheds light on a topic, the details of which are rarely available in research literature from the Middle East. The findings further endorse the need for clinicians to listen to the mothers to consider their
beliefs and the impact of these beliefs on their experiences. This, in turn, may provide a valuable conceptual lens for health care practitioners to use the family-centered model when working with cerebral palsy children.
Original languageEnglish
Pages (from-to)1-11
Number of pages11
JournalGlobal Qualitative Nursing Research
Volume6
DOIs
Publication statusPublished - 28 Apr 2019

Bibliographical note

This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).

Keywords

  • cerebral palsy
  • children
  • perception
  • mothers
  • critical ethnography
  • Saudi Arabia

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