On the Brink of Genuinely Collaborative Care: Experience-Based Co-Design in Mental Health

Michael Larkin, Zoe Boden, Elizabeth Newton

Research output: Contribution to journalArticle

Abstract

Inpatient mental health services in the United Kingdom are currently dissatisfactory for service-users and staff. For young people with psychosis, being hospitalized is often distressing, and can lead to disengagement with mental health services. This article describes how we took three qualitative research studies about hospitalization in early psychosis (exploring the perspectives of service-users, parents, and staff) and translated them into service improvements developed in collaboration with a range of stakeholders, including service-users, carers, community and inpatient staff, and management. We used an adapted form of experience-based co-design (EBCD), a participatory action- research method for collaboratively improving health care services. The use of EBCD is still relatively novel in mental health settings, and we discuss how we adapted the methodology, and some of the implications of using EBCD with vulnerable populations in complex services. We reflect on both the disappointments and successes and give some recommendations for future research and methodological development.
Original languageEnglish
Pages (from-to)1463-1476
JournalQualitative Health Research
Volume25
Issue number11
DOIs
Publication statusPublished - 31 Mar 2015

Fingerprint

Mental Health Services
Psychotic Disorders
Inpatients
Mental Health
Qualitative Research
Health Services Research
Vulnerable Populations
Caregivers
Health Services
Hospitalization
Parents
Delivery of Health Care
Research
United Kingdom

Keywords

  • Action Research
  • Service-user involvement
  • mental health nursing
  • psychosis
  • hospitalisation
  • inpatient experiences
  • acute care
  • Mental Health
  • Young adults
  • early intervention
  • health care practitioners
  • Service improvement or transformation

Cite this

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abstract = "Inpatient mental health services in the United Kingdom are currently dissatisfactory for service-users and staff. For young people with psychosis, being hospitalized is often distressing, and can lead to disengagement with mental health services. This article describes how we took three qualitative research studies about hospitalization in early psychosis (exploring the perspectives of service-users, parents, and staff) and translated them into service improvements developed in collaboration with a range of stakeholders, including service-users, carers, community and inpatient staff, and management. We used an adapted form of experience-based co-design (EBCD), a participatory action- research method for collaboratively improving health care services. The use of EBCD is still relatively novel in mental health settings, and we discuss how we adapted the methodology, and some of the implications of using EBCD with vulnerable populations in complex services. We reflect on both the disappointments and successes and give some recommendations for future research and methodological development.",
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On the Brink of Genuinely Collaborative Care : Experience-Based Co-Design in Mental Health. / Larkin, Michael; Boden, Zoe; Newton, Elizabeth.

In: Qualitative Health Research, Vol. 25, No. 11, 31.03.2015, p. 1463-1476.

Research output: Contribution to journalArticle

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AU - Newton, Elizabeth

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AB - Inpatient mental health services in the United Kingdom are currently dissatisfactory for service-users and staff. For young people with psychosis, being hospitalized is often distressing, and can lead to disengagement with mental health services. This article describes how we took three qualitative research studies about hospitalization in early psychosis (exploring the perspectives of service-users, parents, and staff) and translated them into service improvements developed in collaboration with a range of stakeholders, including service-users, carers, community and inpatient staff, and management. We used an adapted form of experience-based co-design (EBCD), a participatory action- research method for collaboratively improving health care services. The use of EBCD is still relatively novel in mental health settings, and we discuss how we adapted the methodology, and some of the implications of using EBCD with vulnerable populations in complex services. We reflect on both the disappointments and successes and give some recommendations for future research and methodological development.

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