The experiential impact of hospitalisation: Parents’ accounts of caring for young people with early psychosis

Gareth Hickman, Elizabeth Newton, Kelly Fenton, Jessica Thompson, Zoe Boden, Michael Larkin

Research output: Contribution to journalArticle

Abstract

This research examines the experiential impact of hospitalisation on the parents of young people with early psychosis. In-depth interviews were conducted with a small sample of parents, and the resulting transcripts were analysed using Interpretative Phenomenological Analysis. Five themes emerged from the data: Accepting and blaming, Feeling out of control, Hospitalisation as temporary containment, Feeling let down by services and Stigma. Aspects of the hospitalisation process were characterised by parents as generally negative, but a number of positive affirmations were also offered regarding the containing, supportive and crucial role of services. Parents’ perceptions of hospitalisation as a difficult, and sometimes distressing, experience are exacerbated by the complexity of being the carer of a young person. Negotiating services and boundaries within the context of this relationship contributes to feelings of exclusion and disregard by professionals and services. The implications of this study resonate with the current government mental health strategy with regard to how services can engage and include carers in the mental health system, and equip and enable them to support their relatives with early psychosis.
Original languageEnglish
Pages (from-to)145-155
JournalClinical Child Psychology and Psychiatry
DOIs
Publication statusPublished - 29 Apr 2015

Fingerprint

psychosis
hospitalization
parents
mental health
exclusion
human being
interview
experience

Keywords

  • early intervention
  • psychosis
  • interpretative phenomenological analysis
  • carers
  • Family caregivers
  • hospitalisation
  • inpatient experiences
  • Qualitative Methods
  • Mental Health Act

Cite this

Hickman, Gareth ; Newton, Elizabeth ; Fenton, Kelly ; Thompson, Jessica ; Boden, Zoe ; Larkin, Michael. / The experiential impact of hospitalisation : Parents’ accounts of caring for young people with early psychosis. In: Clinical Child Psychology and Psychiatry. 2015 ; pp. 145-155.
@article{210e5f2ecde04e899f6ad49f5845d939,
title = "The experiential impact of hospitalisation: Parents’ accounts of caring for young people with early psychosis",
abstract = "This research examines the experiential impact of hospitalisation on the parents of young people with early psychosis. In-depth interviews were conducted with a small sample of parents, and the resulting transcripts were analysed using Interpretative Phenomenological Analysis. Five themes emerged from the data: Accepting and blaming, Feeling out of control, Hospitalisation as temporary containment, Feeling let down by services and Stigma. Aspects of the hospitalisation process were characterised by parents as generally negative, but a number of positive affirmations were also offered regarding the containing, supportive and crucial role of services. Parents’ perceptions of hospitalisation as a difficult, and sometimes distressing, experience are exacerbated by the complexity of being the carer of a young person. Negotiating services and boundaries within the context of this relationship contributes to feelings of exclusion and disregard by professionals and services. The implications of this study resonate with the current government mental health strategy with regard to how services can engage and include carers in the mental health system, and equip and enable them to support their relatives with early psychosis.",
keywords = "early intervention, psychosis, interpretative phenomenological analysis, carers, Family caregivers, hospitalisation, inpatient experiences, Qualitative Methods, Mental Health Act",
author = "Gareth Hickman and Elizabeth Newton and Kelly Fenton and Jessica Thompson and Zoe Boden and Michael Larkin",
year = "2015",
month = "4",
day = "29",
doi = "10.1177/1359104515581716",
language = "English",
pages = "145--155",
journal = "Clinical Child Psychology and Psychiatry",
issn = "1359-1045",

}

The experiential impact of hospitalisation : Parents’ accounts of caring for young people with early psychosis. / Hickman, Gareth; Newton, Elizabeth; Fenton, Kelly; Thompson, Jessica; Boden, Zoe; Larkin, Michael.

In: Clinical Child Psychology and Psychiatry, 29.04.2015, p. 145-155.

Research output: Contribution to journalArticle

TY - JOUR

T1 - The experiential impact of hospitalisation

T2 - Parents’ accounts of caring for young people with early psychosis

AU - Hickman, Gareth

AU - Newton, Elizabeth

AU - Fenton, Kelly

AU - Thompson, Jessica

AU - Boden, Zoe

AU - Larkin, Michael

PY - 2015/4/29

Y1 - 2015/4/29

N2 - This research examines the experiential impact of hospitalisation on the parents of young people with early psychosis. In-depth interviews were conducted with a small sample of parents, and the resulting transcripts were analysed using Interpretative Phenomenological Analysis. Five themes emerged from the data: Accepting and blaming, Feeling out of control, Hospitalisation as temporary containment, Feeling let down by services and Stigma. Aspects of the hospitalisation process were characterised by parents as generally negative, but a number of positive affirmations were also offered regarding the containing, supportive and crucial role of services. Parents’ perceptions of hospitalisation as a difficult, and sometimes distressing, experience are exacerbated by the complexity of being the carer of a young person. Negotiating services and boundaries within the context of this relationship contributes to feelings of exclusion and disregard by professionals and services. The implications of this study resonate with the current government mental health strategy with regard to how services can engage and include carers in the mental health system, and equip and enable them to support their relatives with early psychosis.

AB - This research examines the experiential impact of hospitalisation on the parents of young people with early psychosis. In-depth interviews were conducted with a small sample of parents, and the resulting transcripts were analysed using Interpretative Phenomenological Analysis. Five themes emerged from the data: Accepting and blaming, Feeling out of control, Hospitalisation as temporary containment, Feeling let down by services and Stigma. Aspects of the hospitalisation process were characterised by parents as generally negative, but a number of positive affirmations were also offered regarding the containing, supportive and crucial role of services. Parents’ perceptions of hospitalisation as a difficult, and sometimes distressing, experience are exacerbated by the complexity of being the carer of a young person. Negotiating services and boundaries within the context of this relationship contributes to feelings of exclusion and disregard by professionals and services. The implications of this study resonate with the current government mental health strategy with regard to how services can engage and include carers in the mental health system, and equip and enable them to support their relatives with early psychosis.

KW - early intervention

KW - psychosis

KW - interpretative phenomenological analysis

KW - carers

KW - Family caregivers

KW - hospitalisation

KW - inpatient experiences

KW - Qualitative Methods

KW - Mental Health Act

U2 - 10.1177/1359104515581716

DO - 10.1177/1359104515581716

M3 - Article

SP - 145

EP - 155

JO - Clinical Child Psychology and Psychiatry

JF - Clinical Child Psychology and Psychiatry

SN - 1359-1045

ER -