Redefining the carer-patient model at end of life

Context: While the patient-carer dyad has been broadly described, there is little exploration about carer-patient models in use. Aim: To explore types of carer-patient models in use for those with advanced and progressive disease. Methods: Qualitative interviews were undertaken with patients at risk of dying in the next year and their carers across three sites (residential care home, medical assessment unit, general medical unit). Thematic analysis was undertaken. Results: Four patient-carer models were identified. In these, the provision of care and of coordination of care services were important areas and organised differently across the patient, the carer, and alternative sources of support. Conclusion: A ‘one size fits all’ carer-patient model is outdated and a new understanding of different types of carer-patient models are required to fully inform care delivered at end of life. Key words: End of life l