Manual feeding device experiences of people with a neurodisability

Anne Mandy, Tara Sims, Graham Stew, Dominic Onions

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Neurological bilateral upper limb weakness can result in self-feeding difficulties and reliance on carers. Mealtimes become time consuming and frustrating. This exploratory inquiry examined the experiences, of users of a feeding device. Method: Semi-structured interviews were conducted either by telephone or administered via email to explore quality of life, changes to independence, benefits/limitations, and psychological impact of the equipment. Findings: Thematic analysis gave rise to five themes: Independence, emotions, impact on life, motivation and limitations. Conclusion: This exploratory inquiry has contributed new qualitative evidence to the knowledge and understanding of users' experiences of a manual feeding device. Users report that the need for assistance/support is reduced and their quality of life, independence and freedom improved. Time and resources savings for the family, carers and staff appear to result in a more equal relationship between user and carer.
Original languageEnglish
Pages (from-to)1-5
Number of pages5
JournalAmerican Journal of Occupational Therapy
Volume72
Issue number3
DOIs
Publication statusPublished - 6 Mar 2018

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Caregivers
Equipment and Supplies
Quality of Life
Telephone
Upper Extremity
Meals
Motivation
Emotions
Interviews
Psychology

Bibliographical note

© 2016 American Occupational Therapy Association . This is an author-produced version of a paper accepted for publication in American Journal of Occupational Therapy.

Keywords

  • Feeding devices
  • independence
  • quality of life

Cite this

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Manual feeding device experiences of people with a neurodisability. / Mandy, Anne; Sims, Tara; Stew, Graham; Onions, Dominic.

In: American Journal of Occupational Therapy, Vol. 72, No. 3, 06.03.2018, p. 1-5.

Research output: Contribution to journalArticleResearchpeer-review

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AU - Mandy, Anne

AU - Sims, Tara

AU - Stew, Graham

AU - Onions, Dominic

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PY - 2018/3/6

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N2 - Neurological bilateral upper limb weakness can result in self-feeding difficulties and reliance on carers. Mealtimes become time consuming and frustrating. This exploratory inquiry examined the experiences, of users of a feeding device. Method: Semi-structured interviews were conducted either by telephone or administered via email to explore quality of life, changes to independence, benefits/limitations, and psychological impact of the equipment. Findings: Thematic analysis gave rise to five themes: Independence, emotions, impact on life, motivation and limitations. Conclusion: This exploratory inquiry has contributed new qualitative evidence to the knowledge and understanding of users' experiences of a manual feeding device. Users report that the need for assistance/support is reduced and their quality of life, independence and freedom improved. Time and resources savings for the family, carers and staff appear to result in a more equal relationship between user and carer.

AB - Neurological bilateral upper limb weakness can result in self-feeding difficulties and reliance on carers. Mealtimes become time consuming and frustrating. This exploratory inquiry examined the experiences, of users of a feeding device. Method: Semi-structured interviews were conducted either by telephone or administered via email to explore quality of life, changes to independence, benefits/limitations, and psychological impact of the equipment. Findings: Thematic analysis gave rise to five themes: Independence, emotions, impact on life, motivation and limitations. Conclusion: This exploratory inquiry has contributed new qualitative evidence to the knowledge and understanding of users' experiences of a manual feeding device. Users report that the need for assistance/support is reduced and their quality of life, independence and freedom improved. Time and resources savings for the family, carers and staff appear to result in a more equal relationship between user and carer.

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KW - quality of life

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