Inform with care: ethics and information in care for people with dementia

Marian Barnes, Flis Henwood

Research output: Contribution to journalArticle

Abstract

Good care is often positioned as a natural by-product of the widespread availability of good information ( association through empirical investigation of the information in the context of dementia care. It combines critiques of the care with insights from the epistemological dimension of care ethics to argue that information is better understood as relational practices of care involve the mobilisation and negotiation of different types of knowledge that are specific to caring relationships and contexts. The argument is illustrated through the three cases of caring relationships taken from a qualitative evaluation of an information and support course for carers of people with dementia. These cases highlight the specificity of caring relationships and the very different consequences of introducing new forms of knowledge into each relationship and provide evidence for the need for a paradigm shift where the idea of informing to care is replaced by a process of informing with care. In the former, information is understood as separate and outside of care, while nevertheless acting upon it to produce care; in the latter, information is understood as inextricably linked to care (with care) but not in any predetermined or uni-directional sense. The paper identifies key interlinked components of the‘inform to care’). This paper contests this–care relationship‘informatisation’ of‘situated knowledge’ and that the‘inform with care’ approach derived from the cases discussed.
Original languageEnglish
Pages (from-to)147-163
Number of pages17
JournalEthics and Social Welfare
Volume9
Issue number2
DOIs
Publication statusPublished - 1 Jan 2015

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Bibliographical note

This is an Accepted Manuscript of an article published by Taylor & Francis Group in Ethics and Social Welfare on 05/05/2015, available online: http://www.tandfonline.com/10.1080/17496535.2014.969753

Keywords

  • Information
  • Relational Care
  • Ethics
  • Dementia
  • Family Carers
  • England

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