IMPlementation of An online Relatives’ Toolkit for psychosis or bipolar (IMPART study): iterative multiple case study to identify key factors impacting on staff uptake and use

Fiona Lobban, Duncan Appelbe, Victoria Appleton, Julie Billsborough, Naomi Ruth Fisher, Sheena Foster, Bethany Gill, David Glentworth, Chris Harrop, Sonia Johnson, Steven H. Jones, Tibor Zoltan Kovacs, Elizabeth Lewis, Barbara Mezes, Charlotte Morton, Elizabeth Murray, Puffin O’Hanlon, Vanessa Pinfold, Jo Rycroft-Malone, Ronald SiddleJo Smith, Chris J. Sutton, Pietro Viglienghi, Andrew Walker

Research output: Contribution to journalArticle

Abstract

Background: Despite the potential of digital health interventions to improve the delivery of psychoeducation to people with mental health problems and their relatives, and substantial investment in their development, there is little evidence of successful implementation into clinical practice. We report the first implementation study of a digital health intervention: Relatives Education And Coping Toolkit (REACT), into routine mental healthcare. Our main aim was to identify critical factors affecting staff uptake and use of this online self-management tool for relatives of people with psychosis or bipolar. Methods: A mixed-methods, theory-driven (Normalisation Process Theory), iterative multiple case study approach using qualitative analysis of interviews with staff and quantitative reporting of uptake. Carer researchers were part of the research team. Results: In all, 281 staff and 159 relatives from Early Intervention teams across six catchment areas (cases) in England registered on REACT; 129 staff took part in qualitative interviews. Staff were positive about REACT helping services improve support and meet clinical targets. Implementation was hindered by: High staff caseloads and difficulties prioritising carers; perception of REACT implementation as research; technical difficulties using REACT; poor interoperability with trust computer systems and care pathways; lack of access to mobile technology and training; restricted forum populations; staff fears of risk, online trolling, and replacement by technology; and uncertainty around REACT's long-term availability. Conclusions: Digital health interventions, such as REACT, should be iteratively developed, evaluated, adapted and implemented, in partnership with the services they aim to support, and as part of a long term national strategy to co-develop integrated technology-enabled mental healthcare. Implementation strategies must instil a sense of ownership for staff and ensure they have adequate IT training, appropriate governance protocols for online working, and adequate mobile technologies. Wider contextual factors including adequate funding for mental health services and prioritisation of carer support, also need to be addressed for successful implementation of carer focussed digital interventions. Trial registration: Study registration: ISCTRN 16267685.

Original languageEnglish
Article number219
JournalBMC Health Services Research
Volume20
Issue number1
DOIs
Publication statusPublished - 17 Mar 2020

Bibliographical note

This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

Keywords

  • Caregivers
  • Case series
  • Digital health intervention
  • Early intervention
  • Implementation science
  • Internet
  • Mental health
  • Psychotic disorders

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    Lobban, F., Appelbe, D., Appleton, V., Billsborough, J., Fisher, N. R., Foster, S., Gill, B., Glentworth, D., Harrop, C., Johnson, S., Jones, S. H., Kovacs, T. Z., Lewis, E., Mezes, B., Morton, C., Murray, E., O’Hanlon, P., Pinfold, V., Rycroft-Malone, J., ... Walker, A. (2020). IMPlementation of An online Relatives’ Toolkit for psychosis or bipolar (IMPART study): iterative multiple case study to identify key factors impacting on staff uptake and use. BMC Health Services Research, 20(1), [219]. https://doi.org/10.1186/s12913-020-5002-4