Empowering support workers to enable people with profound intellectual and multiple disabilities to engage in activity at home

Research output: Chapter in Book/Conference proceeding with ISSN or ISBNConference contribution with ISSN or ISBN

Abstract

Background: People with profound intellectual and multiple disabilitiesmay not always be well-supported to engage meaningfully in activity at home (Mansell 2010), arguably an occupational injustice (Townsend & Wilcock 2004). Research aimed to understand how occupational therapists seek to improve such support and encourage support workers and managers to adopt professionals’recommendations.Method: A single, purposively-selected case of supporting engagement in activity at home was investigated using a critical ethnographic case study method. An occupational therapist worked with five people with profound intellectual disabilities and their support workers over 1 year. Data were collected using ethnographic methods (participant observation, interviews and document analysis).Results: The case’s story highlights challenges encouraging others to follow recommendations as intended (Cross & West 2011). Its two overarching themes are how shifting support and leadership cultures impact on engagement in activity; and how occupational therapy seeks to create and sustain cultural change by working with support workers in a collaborative and empowering way.Conclusions: Staff occupational risks, in particular of burnout where roles are conflicting or ambiguous (Vassos & Nankervis 2012) may need to be addressed whilst promoting occupational justice for residents. The complexity of achieving implementation fidelity may be under-estimated.
Original languageEnglish
Title of host publicationDiversity & Belonging: Celebrating Difference
Subtitle of host publicationAbstracts of the Fifth International IASSIDD Europe Congress
PublisherBlackwell Publishing
Pages583
Number of pages1
DOIs
Publication statusPublished - 21 Jun 2018
EventFifth International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Europe Congress: Inclusion and Belonging - Athens, Greece
Duration: 17 Jul 201820 Jul 2018
https://onlinelibrary.wiley.com/toc/14683148/2018/31/4

Publication series

NameJournal of Applied Research in Intellectual Disabilities
PublisherWiley
Number4
Volume31
ISSN (Electronic)1468-3148

Conference

ConferenceFifth International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Europe Congress
CountryGreece
CityAthens
Period17/07/1820/07/18
Internet address

Keywords

  • occupational therapy
  • intellectual disabilities
  • support workers
  • activities of daily living

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