A critical evaluation of the effectiveness of interventions for improving the well-being of caregivers of children with cerebral palsy: a systematic review protocol

Jermaine Dambi, Jennifer Jelsma, Tecla Mlambo, Matthew Chiwaridzo, Cathrine Tadyanemhandu, Mildred Chikwanha, Lieselotte Corten

Research output: Contribution to journalLiterature review

Abstract

Background: Over the years, family-centered care has evolved as the “gold standard” model for the provision of healthcare services. With the advent of family-centered approach to care comes the inherent need to provide support services to caregivers in addition to meeting the functional needs of children with physical disabilities such as cerebral palsy (CP). Provision of care for a child with CP is invariably associated with poor health outcomes in caregivers. As such, there has been a surge in the development and implementation of interventions for improving the health and well-being of these caregivers. However, there is a paucity of the collective, empirical evidence of the efficacy of these interventions. Therefore, the broad objective of this review is to systematically review the literature on the effectiveness of interventions designed to improve caregivers’ well-being.

Methods/design: This is a systematic review for the evaluation of the effectiveness of interventions designed to improve caregivers’ well-being. Two independent, blinded, reviewers will search articles on PubMed, Scopus, Web
of Science, CINAHL, Psych Info, and Africa-Wide Information using a predefined criterion. Thereafter, three independent reviewers will screen the retrieved articles. The methodological quality of studies meeting the selection criterion will be evaluated using the Briggs Institute checklists. Afterwards, two independent researchers will then apply a preset data-extraction form to collect data. We will perform a narrative data analysis of the final sample of studies included for the review.

Discussion: The proposed systematic review will provide the empirical evidence of the efficacy of interventions for improving the well-being of caregivers of children with physical disabilities. This is important given the great need
for evidenced-based care and the greater need to improve the health and well-being of caregivers.
Original languageEnglish
Article number112
JournalSystematic Reviews
Volume5
Issue number1
DOIs
Publication statusPublished - 13 Jul 2016

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Cerebral Palsy
Caregivers
Disabled Children
Health
Child Care
Checklist
PubMed
Patient Selection
Research Personnel
Delivery of Health Care

Bibliographical note

This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

Keywords

  • Cerebral palsy
  • Quality of life

Cite this

Dambi, Jermaine ; Jelsma, Jennifer ; Mlambo, Tecla ; Chiwaridzo, Matthew ; Tadyanemhandu, Cathrine ; Chikwanha, Mildred ; Corten, Lieselotte. / A critical evaluation of the effectiveness of interventions for improving the well-being of caregivers of children with cerebral palsy : a systematic review protocol. In: Systematic Reviews. 2016 ; Vol. 5, No. 1.
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A critical evaluation of the effectiveness of interventions for improving the well-being of caregivers of children with cerebral palsy : a systematic review protocol. / Dambi, Jermaine; Jelsma, Jennifer; Mlambo, Tecla ; Chiwaridzo, Matthew ; Tadyanemhandu, Cathrine ; Chikwanha, Mildred; Corten, Lieselotte.

In: Systematic Reviews, Vol. 5, No. 1, 112, 13.07.2016.

Research output: Contribution to journalLiterature review

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AU - Dambi, Jermaine

AU - Jelsma, Jennifer

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AU - Chiwaridzo, Matthew

AU - Tadyanemhandu, Cathrine

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AU - Corten, Lieselotte

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PY - 2016/7/13

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N2 - Background: Over the years, family-centered care has evolved as the “gold standard” model for the provision of healthcare services. With the advent of family-centered approach to care comes the inherent need to provide support services to caregivers in addition to meeting the functional needs of children with physical disabilities such as cerebral palsy (CP). Provision of care for a child with CP is invariably associated with poor health outcomes in caregivers. As such, there has been a surge in the development and implementation of interventions for improving the health and well-being of these caregivers. However, there is a paucity of the collective, empirical evidence of the efficacy of these interventions. Therefore, the broad objective of this review is to systematically review the literature on the effectiveness of interventions designed to improve caregivers’ well-being.Methods/design: This is a systematic review for the evaluation of the effectiveness of interventions designed to improve caregivers’ well-being. Two independent, blinded, reviewers will search articles on PubMed, Scopus, Webof Science, CINAHL, Psych Info, and Africa-Wide Information using a predefined criterion. Thereafter, three independent reviewers will screen the retrieved articles. The methodological quality of studies meeting the selection criterion will be evaluated using the Briggs Institute checklists. Afterwards, two independent researchers will then apply a preset data-extraction form to collect data. We will perform a narrative data analysis of the final sample of studies included for the review.Discussion: The proposed systematic review will provide the empirical evidence of the efficacy of interventions for improving the well-being of caregivers of children with physical disabilities. This is important given the great needfor evidenced-based care and the greater need to improve the health and well-being of caregivers.

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KW - Quality of life

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